Skull Base Information

Skull Base: Information for patients

An overview of services, support and information

 

Brain Tumour Charity Survey

‘Improving Brain Tumour Care’

To complete the survey: Log onto the link

https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/improving-brain-tumour-care-surveys/  or scan the QR code

 

Share your experiences and help create change

 

The Skull Base Team

The Walton Centre Skull Base multidisciplinary team (MDT) consists of Neuro-surgeons,  ENT surgeons, Endocrine specialists, Ophthalmologists, Neuro-oncologists, Clinical nurse specialists and a support worker.  The MDT work in collaboration with Liverpool University Foundation Trust (LUFT), Clatterbridge Cancer Centre (CCC) and North  Wales Trusts to provide excellent and safe patient-centred care. 

 

Clinical Nurse Specialist (CNS) and Clinical Support Worker (CSW)

The Clinical Nurse Specialists and Clinical Support Workers are often the first point of contact.  Also called key workers. They provide support, symptom management, information and  advice through diagnosis, surgery / or other treatment and onward following discharge. To contact the team: email wcft.skullbasenurses@nhs.net

Phone: 0151 556 3449   To bleep CNS:  Call 0151 525 3611 ask for bleep 5342

 

Clinics

Clinics are undertaken as face to face, virtual or telephone appointments. Clinics and scans may take place at The Walton Centre or Aintree Hospital.

For patients that live further away we arrange scans and clinics nearer home. This includes the Isle of Man and North Wales.

Secretaries

Patients can contact the secretary about clinic appointments, clinic letters, admission dates and referrals to other healthcare providers.

Secretary to Miss Gilkes: 0151 556 3347 (The Walton Centre)

Secretary to Mr Yousaf: 0151 556 3350 (The Walton Centre)

Secretary to Miss Munir and Mr Youssef: 0151 525 3404  (Aintree Hospital)

 

Radiology (MRI and CT) scan appointments / general enquiries:

The Walton Centre:  0151 556 3681   MRI 0151 556 3677

Aintree Hospital: (part of Liverpool University Foundation Trust-LUFT) 0151 706 2459

 

Advice, support and  information

Skull Base tumours

Skull Base tumours can be complex. Depending on tumour type and location, symptoms may include: facial palsy, hearing loss, headache, visual problems, tinnitus and  balance disturbance.

 

Holistic Needs Assessment (HNA)

Emotional, practical, physical and psychological support is available through HNA.

HNA is a conversation between key worker (CNS or support worker) and patient/carer. Following the discussion a care plan is agreed and created.

A copy is given to the  patient, one kept in medical notes and a copy is sent to GP.

HNA can be completed at any point in your pathway.

 

Information

There is a wide range of information available on the Walton Centre Trust Website under ‘Your treatment and care’.  By clicking the ‘accessibility button’ you can change the information to other languages, or alter the colour and size  of text for easier reading. Website: https://www.thewaltoncentre.nhs.uk 

 

Health & Wellbeing Events (HWBE)

We run HWBE’s tailored to each tumour group. Events are run yearly and take place at The Walton Centre.

If you would like to attend an event, please contact our support worker : 0151 556  3449

 

Visual Impairment (VI) Champions

Our Trust has a number of VI champions. They have attended training and completed competencies in best practice for caring for patients with visual impairment.

For additional information please call our support worker 0151 556 3449

 

The Walton Centre NHS Foundation Trust

Lower Lane, Fazakerley  Liverpool L9 7LJ Tel: 0151 525 3611
The Walton Centre Patient Experience Team  0151 556 3090

www.thewaltoncentre.nhs.uk  email: wcft.patientexperienceteam@nhs.net

Trust website https://www.thewaltoncentre.nhs.uk/

 

Information and support

Tinnitus: Aintree Tinnitus support Group

1st Wednesday of the month 6-7.30pm Clinical Science Centre Aintree Hospital

www.takeontinnitus.co.uk

 

Pituitary Foundation Helpline: 0845 450 0375

www.pituitary.org.uk

 

BANA (British Acoustic Neuroma Association) Tel: 01246 550011

www.bana-uk.com

 

Facial Palsy Support Group Tel: 0300 030 9333

Bi-monthly 10-12 noon The Brain Tumour Charity, Norton Street Liverpool

www.facialpalsy.org.uk

 

The Brain Tumour Charity

Signs & symptoms, treatment,  online support, the BRIAN app

www.thebraintumourcharity.org/

 

The Brain Charity.

Advice for patients and carers on Neurological conditions

Tel: 0151 298 2999

www.thebraincharity.org.uk

 

Brainstrust

Personalised support

hello@brainstrust.org.uk

 

Bradbury Fields

Support, information, practical help, rehabilitation for those with visual impairment

www.bradburyfields.org.uk  0151 221 0888

 

DVLA

Telephone 0300 790 6806

www.gov.uk/dvla-medical-enquires