Neuromyelitis optica

 

Two NHS Trust logos

The NMOSD service

It is essential for people with NMOSD to be treated early in their condition to prevent relapses and disability. Referrals received from consultant neurologists will be accepted, referrals direct from GPs will be accepted if it is likely the patient has NMOSD or if the patient has AQP4 or MOG antibodies

The aims of this NMOSD service are:

  • To ensure early correct diagnosis and treatment of adults and children with NMOSD
  • Education and support of persons affected by NMOSD
  • Be a source of information and education to health care professionals

We provide:

  • Expert input on diagnosis, assessment and treatments
  • Acute admissions for relapse assessment and management
  • Remote advice to local medical teams
  • Patient telephone and email advice line, manned by the NMOSD Nurse Specialists
  • Access at clinic appointments to a full medical and therapy team
  • Written information and access to websites on NMOSD

NHS England has acknowledged NMOSD as a rare neurological condition that requires specialist expertise and funds The Walton Centre NHS Foundation Trust in Liverpool and John Radcliffe Hospital at Oxford to provide the service.

The Walton Centre, Liverpool:

  • wcft.nmo.advice@nhs.net
  • Tel: 0151 556 4008
  • Fax: 0151 529 2027
  • Nurse specialists: 0151 556 4008
  • NMOSD co-ordinator: 0151 556 4149

The Walton Centre NMOSD team

  • Consultant Neurologist – Dr Saif Huda
  • Consultant Paediatric Neurologist - Dr Rachel Kneen
  • NMOSD Clinical Fellows: Dr Sheharyar Hanif
  • NMOSD Neurology registrar on an observership - Chiara Rocchi
  • NMOSD Nurse Specialists: Sam Linaker and Tricia Kelly
  • Orthoptist
  • NMO Counsellor
  • NMOSD Co-ordinator: Diane Pickering
  • Secretaries
  • Occupational Therapist
  • Physiotherapist
  • Dietitian

John Radcliffe Hospital, Oxford:

  • nmo.advice@ouh.nhs.uk
  • Tel: 01865 231900
  • Nurse Specialists: 01865 231905
  • NMO Coordinator: 01865 231900
  • NMO Secretary: 01865 234837

Click here for The John Radcliffe Hospital team, Oxford:

NMOSD UK Paediatric Service

  • Dr Sithara Ramdas, John Radcliffe Hospital, Oxford